Genetic and community resources

Care Connection for Children

A partner in the Virginia Children's Special Healthcare Needs network—This is a statewide network of regional programs that provide health care coordination, community resources to children that live in Virginia, are under 21 years old, and have a physical disorder that is expected to last 12 months or longer. Call about your child or refer a patient: Phone (804) 827-1795 Toll free 1-866-737-5965

Early intervention services

Find out if you child needs therapy to help meet developmental milestones or refer a patient by calling 1-800-234-1448 (general hotline)

 

Birth defects

• http://www.marchofdimes.com/
• http://www.nlm.nih.gov/medlineplus/geneticsbirthdefects.html

Cancer & cancer genetics

• http://www.cancer.org/
• http://www.facingourrisk.org/
• http://www.peoplelivingwithcancer.org/plwc/Home/1,1743,,00.html

Centers for Disease Control & Prevention (CDC)

• https://www.cdc.gov/

Chromosome disorders

• http://www.ndss.org/
• http://www.chromodisorder.org/
• http://www.rarechromo.org/
• Trisomy 18, 13, & Related Disorders

Clinical trials

• https://clinicaltrials.gov/ct2/

Genetic conditions

• Understanding Genetic Conditions - Genetics Home reference
• http://www.nlm.nih.gov/medlineplus/geneticdisorders.html
• Medline Plus - English
• Medline Plus - Spanish
• http://www.yourgenesyourhealth.org/

Genetic organizations, education and societies

• The American College of Medical Genetics
• Coalition of State Genetics Coordinators
• The National Society of Genetic Counselors Learn about what a genetic counselor can offer you
• Virginia Association of Genetic Counselors

Genetic testing

• Genetic Testing Registry

Genetics education

• Genetics Education Center
• National Coalition for Health Professional Education in Genetics

Rare diseases

• http://www.rarediseases.org/

Support groups

• http://www.geneticalliance.org/

Disclaimer: The above links are informational only. We have no responsibility for the information provided.