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Nicholas Johnson, MD, MS-CI

Nicholas Johnson, MD, MS-CI

out of 5
81 Ratings


Pediatric Neurology




Ambulatory Care Center

417 N. 11th Street
Richmond, VA 23219
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Children's Pavilion

1000 East Broad Street
Richmond, VA 23219
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Short Pump Pavilion

11958 West Broad Street
Henrico, VA 23233
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Medical School

University of Arizona, Tucson, AZ


University of Rochester, Rochester, NY


University of Rochester, Rochester, NY


On the front lines of discovery for neuromuscular treatments
Dr. Nicholas Johnson treats adults and children with both common and rare neuromuscular conditions — yet his work doesn’t end in the clinic. He dedicates significant time each week to laboratory research, and is part of a team at VCU Health working to advance the treatment of genetic muscle disorders, with a special emphasis on muscular dystrophies. 

“Disorders of the nervous system are complex, and require significant research to advance our understanding of them. I have a desire to better understand how diseases occur and how best to treat them,” says Dr. Johnson, who, in addition to his role at VCU Medical Center and the Children’s Hospital of Richmond at VCU, is Neuromuscular Division Chief in the VCU School of Medicine’s Department of Neurology. 

In his clinical practice, Dr. Johnson treats conditions such as muscular and myotonic dystrophies, Charcot-Marie-Tooth disease, and a variety of other nerve and muscle conditions such as spinal muscular atrophy. “I want to not only provide patients with care, but also be the one creating treatments and therapies that could change their lives,” he says. In particular, the neurologist is excited about the development of gene-based therapies, which have revolutionized clinical trials over even the last few years. “We want VCU Health to be on the front lines of new developments to help our patients improve their lives.”

And as an important part of that treatment, Dr. Johnson says, is to have a comprehensive care team. He regularly sees his patients in our multidisciplinary clinics at the N.O.W. Center, Ambulatory Care Center, and CHoR. These clinics are home to physical and speech therapists, social workers, and other health professionals who work to provide the best possible supportive care alongside neurologists like Dr. Johnson.

In 2018, the Muscular Dystrophy Association awarded a $700,000 clinical research grant to Dr. Johnson to establish the Limb-Girdle Muscular Dystrophy (LGMD) Clinical Research Network. The work of the physician and his team will facilitate the development of tools and infrastructure needed to efficiently and effectively conduct clinical trials and accelerate treatments for LGMDs. This diverse group of disorders contains many subtype conditions, all of which include weakness and atrophy of the muscles around the hips and shoulders. 

Dr. Johnson is board-certified in neurology, neuromuscular medicine and neuromuscular pathology by the American Academy of Neurology, and serves on its government relations committee.

Research interests

Dr. Johnson’s research interests include myotonic and muscular dystrophy, Limb-girdle muscular dystrophies, facioscapulohumeral muscular dystrophy, spinal muscular atrophy, and Charcot-Marie-Tooth disease. His research projects range from studies in congenital myotonic dystrophy to investigation in Limb-Girdle muscular dystrophy. He is also currently engaged in research projects in categories such as myotonic dystrophies and facioscapulohumeral muscular dystrophy.


Clinical Interests

Neuromuscular disorders;Muscular dystrophy;Motor neuron disorders;Peripheral neuropathy

Provider Videos

Ratings & Reviews

Dr. Johnson is prompt in answering email or text when I have questions.
February 2024
Honest discussion of options and exceptions. Dr. Johnson is exceptional "lead" doctor and assistant MD clearly ready to solo!
January 2024
Dr. Johnson is considered one of the best doctors for patients with [...] in the nation! Every national group I participate in highly recommends him. I drive from [...] to see him. I am thankful he is at VCU Health!
November 2023
Great doctor.
November 2023
Doc was wonderful, thorough exam provided insight to my condition, suggested food items to try, very kind.
November 2023
I have recommended Dr. Nicholas Johnson to others with movement disorders.
August 2023
Care provider was good but having the PT, DT & ST come in during clinic was EXCELLENT.
July 2023
What impressed me the most was how much he seemed to care about what was going on with me!
May 2023
Dr. Johnson answers my email if I have questions - always listens.
January 2023
Doctor was supposed to have an occupational therapist call for follow up. Either he or they stopped back.
June 2022
May 2022
Very satisfied.
March 2022
He is the third doctor I have seen for my disease and he is the only one that has an knowledge of it!
March 2022
Dr Johnson was very understanding . Answer my question in the way I understand
February 2022