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Growing Older with Lifelong Intellectual Disabilities: When Dementia is Suspected or Diagnosed
Spring 2022 Series

This Project ECHO series is a free, practical, case-based education program for health care and social service providers who want to enhance their knowledge, competence, and performance related to the care of people with intellectual and developmental disabilities affected by dementia. Each ECHO session will include a short (10-20 minute) presentation by a topic expert, followed by a case study submitted in advance by an ECHO participant site, and then open discussion to learn from and teach one another.

Register now for the Spring 2022 series!

ECHO sessions are held on Mondays from Noon – 1:15 p.m. ET


April 11, 2022
Lessons Learned: Providing Palliative Care Supports in Small Group Home Settings
An example of how one agency was able to offer support in small group home settings for people with intellectual disabilities to remain in their home until their death

Leslie Udell
Owner, L. Udell Consulting
NTG Canada Master Trainer, NTG Canadian Consortium
Winnipeg, Manitoba, Canada

April 25, 2022
Keeping the Person at the Center: Shared and Supported Decision-Making
An examination of shared decision making in care planning, and the role of supporters and clinicians when making decisions along the continuum of dementia

Alixe Bonardi, OTR, MHA
Vice President - Intellectual & Developmental Disabilities, Human Services Research Institute
Assistant Professor, UMMS School of Medicine
Worcester, MA

May 9, 2022
Health Advocacy: Where Aptitude + Attitude = Altitude
A framework for how advocates and advocacy can move more than a conversation -- they can move people to action.

Rick Rader, MD
Director of the Habilitation Center
Orange Grove Center
Chattanooga, TN

May 23, 2022
The NTG Early Detection Screen for Dementia (NTG-EDSD)
A tool which can be used by families, support staff and persons served to identify and address changes in functioning and to advance shared healthcare decision-making

Lucille Esralew, PhD
Senior Psychologist, California Department of Developmental Services
Chair, NTG Scientific/Research Consultative Panel and Co-Chair, NTG Advisory Board
Sacramento, CA

June 6, 2022
Case Study Updates and Discussion

Case-based discussions are an important element of the Project ECHO® process, enabling the chance to learn from one another through the sharing of experiences and knowledge. We encourage you to share any challenges you are experiencing or have already overcome that we could discuss as a group of experienced interdisciplinary content experts and peers who may have experienced similar situations. Cases do not need to align directly with the current session topic, however, should be related to the overall series theme.

If you are interested in sharing a case to be discussed at one of our sessions, please fill out and submit our De-Identified Case Story form.